Teeny Tiny Truman

This page is all about Truman, born Aug. 8, 2006 to Kara and Ben.

Monday, December 17, 2007

Access to New Blog

I have just realized that you cannot submit a request at the new blog to be added. Please respond to this thread or e-mail me via this blog to my hotmail account and ask to be added if I have forgotten to invite you.

Sorry for the confusion.

Edited to Add: We've had several requests from loyal blog followers and friends of friends to be added to the new blog reader list. However, we really are restricting it to friends and family whom we know. I do apologize, but it's what we think is best for our family.


Blogger drbeggs said...

Daniel and I would love to added to the list of folks allowed to see the new blog. Congratulations on the end of an emotional first year!
-Rachel Beggs

6:24 PM  
Blogger Rizel said...

Hi, I don't know if you are adding people you don't know, but I've been following Truman's progress since he's been born, and I'd love to be able to continue. My name is Jenny, I have 3 little boys, and we live in PA. Thanks, and God bless!

6:49 PM  
Blogger Judy from SS said...

Kara, I would like to be able to keep up with your miracle BEN. Please add me to your blog posts.
Judy Payne Mills
Sulphur Springs


9:22 PM  
Blogger Kellie said...

Can I get an invite please?

Kellie, mom to Carson and Eli (340wkr and 25 wkr)

blog: http://earlybirdboys.blogspot.com

e-mail: kappavb9@yahoo.com


7:00 AM  
Anonymous Suzyq44444@yahoo.com said...

As much as i hate to see ya'll go i completely understand. I know the new blog is for family and friends. I would love if you would stop in every 6 months or so just to update on how Truman is doing. He is such an amazing child and gives so much hope for parents facing the same decision ya'll faced.
Thanks again for sharing your child and life with me.

7:31 AM  
Blogger Tina said...

I have enjoyed reading about the journey. I am not a friend or family member but someone who would love to continue to read about Truman. I read your story on BabyCenter when I was pregnant with my son. I'd be honored to be included. My email is tiny2505@yahoo.com

9:27 AM  
Blogger Penn & Janet said...

This comment has been removed by the author.

9:57 AM  
Anonymous Anonymous said...

Hi Kara,

I would love to be added :)

10:20 AM  
Anonymous Lynda Hart said...

I would love to be included on your new blog. I was one of Ben's babysitters when he was in elementary school, and I'd love to be able to continue to follow Truman's story. My parents are still members at Covenant and I now live in Houston. My email is LHART@WILLIAMSKHERKHER.COM. Thanks!

Lynda Hart (formerly Lynda Sines/Farley)

2:58 PM  
Anonymous Carolyn said...

Hi Kara,

Your final post below is beautiful. It brought tears to my eyes.

I don't think I've been added yet, but if you get a chance, the email is carolyntapie@gmail.com.

3:40 PM  
Blogger Jennifer said...

I've been following you since day one and would love to get an invite :)

3:48 PM  
Anonymous Anonymous said...

Don't forget me! :o)


after 1/1/08/: angela.snider@klgates.com

4:02 PM  
Anonymous Anonymous said...

I truly have enjoyed following Truman's miraculous story since he was born. I have been awed and inspired by your incredible son.

I know the new blog is for family and friends only. Truman means so much to so many people who frequent this blog. I know that I'm not the only one who would love it if you kept this blog open and continued to update every six months or so. I do understand the need to make Truman's blog private, but I would love to still get occasional updates on such a special little boy.

All the best to you and your family.

Melissa :)

4:44 PM  
Blogger Family of 4 said...

I'd love to be added. My son, Isaiah was born premature too! At 1 year he was 15# 1oz! Truman is doing amazingly well!


6:02 PM  
Blogger Lesley said...

Kara, I too have followed Truman's story since his birth after hearing of it on BBC's Dec 06 board. My son was born December 22nd. I also have a 3-year old who was in the NICU after her birth for complications.

I would love to be able to continue to follow Truman's story. If you would add me to Truman's new blog, I would really appreciate it. My email is tttiggerrr@gmail.com

6:59 PM  
Blogger Kathryn and Tim said...

I would love to keep up with Truman's progress...can I get the invite to the new blog?

9:23 PM  
Anonymous Anonymous said...

Kara, please add me to the blog, so I can keep up with you guys. Have a wonderful Christmas.

Stacie Tandy

10:27 PM  
Anonymous SJ said...

I would love to be added. I have followed from day 1 when my daughter was born on Truman's due date and have loved how he has grown and have been so inspired by your family. I understand if not, but would really miss you all!
Love Sarah & Erin Paige

3:25 AM  
Anonymous Anonymous said...

Judy Grimes, Gilmer TX Please invite me to your blog. Jgrimes02@yahoo.com

11:37 AM  
Blogger Mamã da Bruna said...

Hello, I have been following your blog since the very beguining and even comented a couple of times, I woud love to keep reading you, but I really understand if you don't accept my request. Let me know if you accept my request :)
Thank you and all the best for your baby and your family!

Merry Christmas

12:13 PM  
Blogger Sonia&Mi said...

I would love to added to the list.
I was pregnant of my daugther when Truman´s born. I read this blog everyday and i would love to continue to read the new one.

My e-mail is

Thank you in advanced.

12:17 PM  
Blogger Kristoffer and Tamara said...

Ben, Kara and Truman-
We have been following Truman via this blog since Ben left Crossmark. We have enjoyed the updates and would love to be included in your new blog! Wishing you the best!

Kris Tesch and family

7:32 PM  
Blogger Tasha said...

I would love to stay on to view Truman. Ive followed you guys since The Dec 06 board!zackwyattsmom@gmail.com

9:01 PM  
Anonymous Anonymous said...

Kara, my comment has not appeared so it maybe got lost. But I would dearly love to continue following Truman's story if you are willing. My email is

Kim (Leslee H.'s friend)

9:55 AM  
Blogger Kathy Stamback said...

Kara and Ben -

Please consider adding me to your new blog. It has been some very treasured moments for me to have followed Truman's progress all these months. He is an adorable boy and thanks for sharing all the pictures and ups and downs of his first 16 months. Truman is extremely lucky to have such wonderful parents.
Please also remember that if you ever need anything I am only a phone call away.
Again, thanks for sharing.
Kathy Stamback

12:58 PM  
Anonymous Rick said...

Kara, Ben and Truman - please add me to the new blog. richardforcum@hotmail.com

Best wishes and have a Merry Christmas and Happy New Year

2:50 PM  
Anonymous Anonymous said...

I would love to be added to your new blog. I have been watching Truman grow since day one. I too am a mother of 2 23 weekers.
Happy Holidays and god bless.



4:30 PM  
Anonymous bingomamma19 said...

Congratulations on such a successful year plus for Truman. I have read this blog since he was born. I am a member of the Dec 2005 Snugglers on Ivillage and am just amazed and so happy for you and your family on how well Truman has done. To think that even a few years ago, he would not have even been given a chance to survive is amazing. I wish you guys the best and hope Truman brings more joy each day to your lives. I hope you update the blog every few months, I love reading about the miracles that can happen and it makes me appreciate all the little things in life even more. my email is bingomamma19@yahoo.com if you would like to invite others to join your other blog. I understand if you do not. I wish you all only the best and peace and happiness for the holidays and future.

Thank you for sharing you story with everyone. It has truly been inspiring.

7:54 PM  
Anonymous Anonymous said...

Kara & Ben,
Merry Christmas! I would love to be included on the new blog list, although I do get pretty regular updates from Truman's grandparents.
Many blessings & peace,
Dawn Kingsbery

10:06 AM  
Anonymous Anonymous said...

Ben and Kara and Truman,

Merry Christmas! I'll add my thanks to those of others for your willingness to share this journey with total strangers. I have truly marveled at Truman's story and am so glad that it has turned out so well. While I will miss the updates, I certainly understand your decision to go private. I wish the best and pray for you all.

Kim (Leslee H's friend)

10:38 AM  
Blogger Tina said...

Thanks for letting your loyal followers know of your decision. It seemed pretty clear that you were restricting it from your final post but I guess all of us were hoping to change your mind. Anyhow, I wish your family the best and hope that your Truman continues to do well.

3:03 PM  
Blogger abby said...

Hi Kara,

I thought the last couple of posts were beautiful. I also understand why you are choosing to limit access to Truman's new blog. But, if, as at least one other commenter requested, you might consider sending emails to those of us following Truman's story every now and then, I'd love to be part of that list. As a fellow mom of a 23 weeker I obviously have a special interest in how our kiddos are all doing. So, if you feel so inclined, drop me a line every now and then or update the preemie blog moms list. I'm sure a lot of us follow Truman's progress.

Merry Christmas, and wishing you all a happy new year and all of the best, always, to Truman.


My email is

Abbyschrad AT Earthlink DOT net

2:02 AM  
Blogger Keegan said...

Greetings from the Heartland. What a great nice post to finish this blog with. Along with the others whom you have not known, I have followed Truman's blog. I remember in August on my expecting club (due in nov) I saw the post that you had Truman, my heart sank for you guys...then only 4 weeks later, I had my 4th child, Cooper at 31 weeks. Now I know that 23 weeks and 31 are very different gestations, but Cooper has a lot of the same struggles as Truman, some less, and some more. He has been an inspiration for me to contiune therapy, because as you guys sure know it wears a person down with so many appointments. I sometimes feel like I am caring for the president. My son has also been diagnosed with sensory integration disorder, he is 90% tube feed through a g-button, we are working on oral feedings but due to his severe reflux it is difficult. Cooper has tube in his ears, has no spoken words. He doesn't sleep through the night at 15 months, and he can not even crawl yet. Kara, I am sure there are times when you worry about Truman, and most people have no idea of what the worry is about. Some people call me overprotective, but I call it supportive. Sometimes I cry at the thought of the future...but then all Cooper has to do is give me that look and my heart melts for him.

You guys have done wonderfully with little Truman. Keep up the great work. God has surely blessed your family with his presence.

Best of luck in the future.

Jessica Jensen
Decorah, Iowa

2:35 AM  
Blogger Sue said...

Cinda asked me today if I'd requested an invitation to the new blog. I don't want to intrude but would love to keep up with your family. Love-Sue Hammons


Changed from cshammons@cox.net

9:46 PM  
Blogger Joanne said...

I can only thank you for sharing so much with so many people. Your little guy has been truly inspirational; a miracle if there there was such a thing in modern times.

May he continue to do so well, and have a bright and brilliant future.

12:47 AM  
Anonymous Sarah B. said...

What a wonderful final post! I, too, have followed Truman's life from the beginning. What an amazing little boy he is. I think of you all and pray for him often. I hope that you might consider stopping by every six months or so with a small update for the rest of us who have grown to love Truman too. Merry Christmas!

3:35 PM  
Blogger Ruth Rachel Vendsel said...

Hi Kara,

I always love checking in on your family whenever I can. My email is rachelvendsel@yahoo.com

I saw your parents briefly at the North East Texas Choral Society concert. We were in town just for that weekend.

I loved your re-cap of Truman's incredible journey. He is so blessed to have you as parents.

Love and take care,
Rachel (Allen) Vendsel

10:16 AM  
Anonymous Anonymous said...

Just want to say my prayers and best wishes will always be with Truman.I first googled and found Truman when at 24 weeks gestation i found out i was about to deliver any day.Among the countless horor stories yours was one that gave me a ray of hope that all was not lost.I delivered my son at 25 weeks gestation and as anybody in a similar situation went thru a long hard road.My son Abdullah also had a grade 3 brain bleed that later resolved to a grade 1 bleed.By the mercy of God he is now a healthy 6 months corrected age miracle boy who manages to surprise us every single day with his strength and determintion. I owe you guys a lot for keeping me focused through the tough days,for giving me strength through sharing your own success and i wish you all the best in the future. I don`t know what the path ahead holds for any of us but I do know that if our children made it thru this much and have come this far then it is for a reason. And we just have to trust God and hope for the best. Do keep us updated once in a while if atall possible. My email is tazneen@rocketmail.com.

3:16 AM  
Anonymous Anonymous said...

I am so sorry to see you go! I was on iVillage in the expecting group for October 2006 and still remember when what you had gone through was posted by someone on our "month". I have been following every since, as we have a miracle baby, as well. Though she was not too early, she was not ever even supposed to be able to be conceived, so I have really enjoyed reading about your miracle baby. It makes me feel like these little souls are supposed to be here to do something great. Good luck to you all and thanks for letting us in to see your precious little boy and how he has developed. I will really miss reading about all of his successes! God bless!

1:56 AM  
Anonymous Anonymous said...


I would really like to be added to your list. Have kept up with Truman throughout his birth and progress. Made me think of my Brandon.
Betty Husbands bettyhusbands@yahool.com

4:33 PM  
Anonymous Anonymous said...


I would love to be added to your list. Have followed Truman since birth. Makes me think of my Brandon.


4:36 PM  
Blogger Judy said...

I would love to continue reading about Truman's progress. I have three grandchildren. My granddaughter will be eleven (I homeschool her) this month and her brother will be three tomorrow, Jan. 8. My other grandson is two. I keep all of them while their parents work. I love babies and have an extra special spot for preemies since all three of my grandchildren were. My uncle was a pediatrician so I guess that's another source for my soft spot for the little ones. I'd love to be included to the blogspot if you open it up to others who have been following Truman's progress. I've been reading since the beginning. My regular e-mail is gulfmiss@bellsouth but have an account as gulfmiss at gmail too.

11:40 AM  
Blogger Jenny said...

ohh rats! I've been reading this blog for a while..but haven't had the time to comment. I hope all goes well with your new blog.


9:16 PM  
Anonymous Anonymous said...

I read the latest updates and 'recap' in absolute tears... Truman is BEAUTIFUL!!!!

What a journey - scary and joyful

Best to you and yours- enjoy your son.

Hastings Momma- April

9:45 AM  
Anonymous Anonymous said...

Just a thought to consider . . . why did you make this blog public in the first place? Did you only need people's help, prayers, thoughts, etc. when you were going through some really hard times? And now that Truman is doing well you don't need us anymore? That sounds a bit selfish. Why not go 50/50 and at least post a progress update every 6 months or so. That would show everyone that cared enough for you that you also care for them.

10:30 AM  
Blogger Ben & Kara said...

I must reply to the most recent comment. We initially posted the blog for friends and family who wanted to keep up with Truman's struggle during the darkest days. It became public, how it spread as wide as it did, we don't know. The prayers and kind thoughts were appreciated, sure, but it was mostly a medium to avoid dealing with people when we didn't have the time or emotional energy to do so.

Choosing to close the blog to the general public is something that I believe is in the best interest of my child and my family. Making the best decision for one's child is never selfish.

His struggles are far from over, but he/we deserve our privacy. If you can believe it, I have met complete strangers who feel like they know me when they find out I am "the mother of Teeny Tiny Truman." That's just weird. And, he will grow up and probably wish his life wasn't so public.

We leave up the original blog to provide the same service to other parents that their blogs provided to us--knowledge, realism, and hope.

11:16 AM  
Anonymous Anonymous said...

B&K - another lurker originally via BBC wishing your family well. I applaud your decision to go private; a close friend with a unique baby (aren't they all) with special needs just went private with hers too. on a side note, with the recent photos I noticed you CD, yeah! :) who knows, maybe our boys will be classmates one day! Best, Mom to a Jan 07 DS

7:39 PM  
Anonymous Anonymous said...

I COMPLETELY agree with your decision and though I will miss not reading updates, I am the same about my former 28 weeker. I keep our own blog private. Shame on those calling you selfish.

Good luck and best wishes,


10:12 PM  
Blogger Sniksaht said...

Thanks so much for inviting us into your lives and letting us watch your miracle for a little while. I am sure it has given hope to many. I wish you the best of luck in the future.

Happy Birthday Truman!

10:44 PM  
Blogger Jeff, Vicky and Kira said...

I would just like to wish your family all the best in the future.

8:42 PM  
Blogger Aleesh said...

I too am from the Dec 06 EC on iVillage. I have followed your family's journey since the start and have looked forward to all of Truman's updates. I completely understand you wanting to privatize your blog, but please come over to the December 06 Playgroup from time to time and send us an update! I wish you and your family the best.

10:23 PM  
Blogger oujennifer78 said...

You don't know me but I've been following your blog for awhile. My son was born at 27 weeks and is now 16 months (real age). Your son is truly a miracle for being born at 23 weeks. He looks so happy in his recent pictures. I'm not family or friends, so I understand you wanting to keep your blog private. I just wanted to wish you and your family the best.


9:54 PM  
Blogger Chris said...

hey kara, we'd like to join in too. drop me a line sometime.


1:40 PM  
Anonymous Anonymous said...

Can you give us a yearly update on our Truman please ? : )

Just come back and let us know in a year how things are.....

6:37 PM  
Anonymous Anonymous said...

I'm sad that this journey with Truman is coming to an end. I respect your decision. I just hope you can maybe keep us posted?
My son was born Decmeber 19, 2006. I dont' remember how this blog came to me but I would check daily on Truman while pregnant. I prayed that he would be strong and survie. I prayed that he would overcome his surgeries and battles. I prayed that he would grow to be a healthy, striving, vibrant baby who would catch up with all the other babies. I prayed that his mom and dad would be strong and he'd be home soon. Now I don't have time to check daily. I do check and get caught up when I can.
I have laughed, cried and felt pain and immense joy for all of you. I see a miracle in him as he is such a blessing.
You both are so strong and Truman choose the perfect parents.
I'm at working crying. I know that Truman will overcome all these obstacles "issues" he faces. He will surprise all of us.
You even taught me a get trick about treating diaper rashes, the blow dryer. This saved us an my boy son's bum!
My son is 15 months and he still eats #2 baby food. I try new things and he spits them out. He will eat some table food. I think not all toddlers like the texture. Don't forget a probiotic is a great way to help his immune system and digestive tract. We used it for Ty's GERD/reflux. The second benefit was he didnt' get sick until 13.5 months. He's on his first round of antibiotics for an ear infection and has yet to get diahrea or a yeast infection.

Thank you for sharing the first year of Truman's life with all of us. I will keep you in my thoughts, in my prayers and in my heart. I wish you all the best in life.
Charmaine and Tyler

4:57 PM  
Blogger Tina said...

I came back here to see if you guys had decided to keep any sort of update. I see now a little more why you want to keep it private when you have some stranger calling you selfish! I was sad to see the blog go but you know I think that it is your personal decision and it shouldn't be something you have to justify particularly to people that you don't even know. Also, I think you can ask blogger to remove that comment (the one that couldn't even have the guts to publish their own information and used anonymous) and you could even put can also put comment moderation on if you want. Lastly, you might even be able to get them to put on a message that this blog is closed to new comments.

Good luck and best wishes to Truman. I think it is wonderful that you guys have chronicled this journey and to have taken the time to write down what your thoughts and feelings were during this emotional year will be a treasure for you and those in the future that may read this because they are seeking understanding regarding their own experiences.

God Bless and I hope you don't take what I am putting in this post the wrong way.

8:47 PM  
Blogger Jill said...

Just needed to tell you that I've been following your blog on Truman off and on since the beginning. I wish you all the best and hope that he continues to thrive!

Best wishes.

8:55 PM  
Anonymous Lisa said...

HI Kara,

I just wanted to tell you I followed Truman's journey since the beginning. I was on the iVillage PG board with you and had the same due date. I had a high risk pregnancy and ended up in the hospital for a few weeks. During that scary time your story gave me a lot of hope. My little guy was only a little early and spent "only" 9 days in the NICU. I'm not sure why I felt I needed to write you before I removed Truman's blog from my favorites. I wish you and your family the best!
Lisa - lcarey@sprynet.com

5:26 PM  
Anonymous Tara S. said...

I'd love to have an invite to your new blog. My name is Tara and I was 23 weeks along when you were 23 weeks along and I've been following Trumans story :) I'm so happy he is doing so much better!!

My email is xphiletc@hotmail.com


7:30 AM  
Anonymous Jessica said...

Kara and Ben, I hope all is well as Truman nears his 3rd birthday! I found your blog when I was pregnant with my second child and read each day to see how Truman was growing, amazed at his progress. Now that I am 23 weeks pregnant with my 3rd, I find myself thinking about Truman again. I just wonder how he is doing as he is getting older and how your family is. Have you had any more children? I think it would be great if you have time to post an update with some birthday pictures or such. Best of luck to you and your family. =)

10:24 PM  
Blogger Our Family said...

My name is Sarah and I live in Boise, Idaho. We have a son named Truman who was born Aug. 4, 2005 at 26 weeks gestation and weighed 1 pound 10 ounces. I found you on goole when I entered "cerebral palsy truman" I was curious to see what would come up. (we have our own blog...) I would love to be added to view your blog...but understand if not...I just wanted to leave you a message because I thought the coincidence was uncanny. Good luck to you and your family.

10:04 PM  
Blogger Tina said...

For some reason, I thought of that picture you guys posted when you brought Truman Home. (I saw a Mom holding an infant in front of the mantel over the fireplace on TV).

I just thought I'd stop and see if you guys posted anything new.

Take care and Merry Christmas.

7:32 PM  
Blogger The Webb's said...

we love reading about truman :) he's such an inspiration.

11:27 PM  

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