Teeny Tiny Truman

This page is all about Truman, born Aug. 8, 2006 to Kara and Ben.

Thursday, September 21, 2006

Thursday, Sept. 21 update and Neural Scan Results

Truman's nurse said this morning that his blood count looks like the antibiotics are starting to work. Most of these antibiotics are used over a 10-day course, so we're hoping to see marked improvement by Monday, September 25th. We still don't know what he has, and the cultures are still negative, but it looks like he's making some progress toward getting better. His heart rate was lower yesterday, and his blood pressure was higher -- both positive signs. He also started stooling into his bag yesterday after several days of not doing so. Dr. Khattak said that is a positive sign that he's getting better as well.

Dr. Khattak also reported the latest head scan results, showed us the images, and talked with both of us about the results again. The swelling in the ventricles has increased. He will now be given weekly neural scans to watch for increased swelling. If it continues to increase, they will consider a shunt or a type of reservoir placed into his head to drain the fluid and relieve the pressure on his brain. While the ventricles themselves are not brain tissue, if they continue to swell they can place pressure on the surrounding brain tissue and cause damage. Because Truman's skull is still soft, he probably still has some room to go with swelling before the pressure causes serious problems. Both of his ventricles are currently classified as having Grade III bleeds.

Regarding the bleed that is in another area in Truman's brain, Dr. Khattak said it is starting to "organize," forming a pit or cyst in the area that the bleed occurred. In the scan two weeks ago, there was some resolution on the bleed, but the bleed has not decreased in size during the last two weeks. Because it is organizing, Dr. Khattak said that the radiologists and neonatologists believe that it will not resolve any further and that area will be permanently damaged. However, he stated that it is a very small area of his brain and that it is a good thing that the blood is not surrounding the ventricles. For the first time, we talked about what goes on in that portion of the brain. He said that the damaged portion of the basal ganglia controls some motor functions and thinks that the results of the size and location of Truman's brain bleed leaves him with about a 30 to 50 percent chance of cerebral palsy. He said we should be hopeful that this would not be the typical type of cerebral palsy that one generally thinks of, but more likely something like a twitch or involuntary movement of limb that won't render it unusable like most palsy does. Of course, all of this is simply an educated guess. Only time will tell the true results of Truman's brain bleed.

Truman's weight is still at 2 lbs, 5 ounces. The plan is to start feeds again tomorrow. He is still on the high-speed ventilator and will probably be there for another week or more.

--Kara & Ben


Anonymous Ally said...

Hi Kara & Ben,
My name is Ally from the Preemie Parenting board on Babycenter. I posted a few days ago & have been following Truman's story because he reminds me of my son, who was a micropreemie with bilateral grade III bleeds. My heart aches for you because I know how you feel right now...the "not knowing" is so hard as far as what the future holds. He sounds like he's doing well health-wise: he seems to be handling that infection well. That just shows you how strong your son is!! I just know that he will be just fine & this will be the best holiday season EVER because you will have your son home with you!! If you have any questions from parents who have been through it, please don't hesitate to email me at joemama126@yahoo.com. Hang in there & know that many, many people are praying for your family!

2:06 PM  
Anonymous Megan said...

Hi Kara & Ben,

One of the ladies on the Nov 06 Birth Club on Baby Center posted a link to Truman's blog, and I've been following along for the past week or so.

I just wanted to pop in and let you know that I'm thinking of the three of you all the time. Truman is certainly a little fighter and I know he will bring you so much joy in the weeks, months, and years ahead.

I'm very happy to see that he's starting to feel better after this infection and I'm hoping and praying that the swelling in the ventricles decreases soon.

I have walked for the March of Dimes for the past two years in honor of a friend from Baby Center's daughter (who was 2lbs at birth, but a very happy and bright 18 month old now), and I will certainly be thinking of Truman when I do the walk again in 2007.


3:28 PM  
Blogger Mike and Lorri said...

Hello, this is the first time that I have posted on your blog. I am one of the moms from the November expecting board. I also am one of the preemie moms. Jack is mine. I ahve been following Truman since you have had him. I am also the mom of two other preemies. I fell for you. All of this is new to me. My other two were 32 and 34 weekers so having Jack has been very trying, and all new. I pray for Truman everynight. Keep up the good work and just know that we are pulling for the three of you. God bless you

3:57 PM  
Blogger Maggie (Sarah's mom) said...

I'm glad to hear that the infection seems to be getting better. Truman remains in my prayers!

Maggie (IV Preemie Board)

5:33 PM  
Anonymous Jason and Kerri said...

Ben and Kara,

Our thoughts never stray far from you and little Truman. We love you guys and will continue to pray for you and your beloved son.

Love, Kerri and Jason

11:01 PM  
Anonymous Anonymous said...

Hang in there little guy. You can do it!

10:29 AM  
Blogger dcj said...

Hi Kara and Ben,

My name is Carrie and my daughter was in the Baylor NICU last year. She was a 27-weeker. I have followed Truman's blog from the beginning. I'm sorry to see he's having a rough time but it seems he is a fighter. Try to stay strong and just know that there are so many people thinking of you guys. The Baylor NICU staff is an amazing group and will take good care of Truman (and you guys).

Carrie (Julia's mom)

11:54 AM  
Anonymous Anonymous said...

We continue to keep you and Truman in our prayers. We believe Truman has a blessed future ahead!

Love and Prayer,
Sue and Eddie Hammons

10:06 PM  

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