Teeny Tiny Truman

This page is all about Truman, born Aug. 8, 2006 to Kara and Ben.

Monday, September 11, 2006

He breathes ...

Truman is quite the amazing baby! Yesterday, he was promoted to C-PAP only. That means that the machine offers constant pressure to keep his alveoli from completely closing when he exhales, but he is doing all the inhaling and exhaling himself. That means he's doing the breathing. Nurse Julie likened it inflating a balloon. It's a lot harder to inflate a new balloon with no air in it than it is to inflate a balloon with a little bit of air in it. That's what C-PAP does. It keeps a little bit of air in the alveoli to make the job of breathing a little easier for Truman. There is still a good possibility that he will tire out and have to be re-intubated, but for now, he's impressing everyone. All the nursing staff is amazed at his progress.

He still has a couple of big de-sats a day (his blood oxygen level drops really low). Sometimes these are now accompanied by episodes of bradycardia, which means his heart rate drops really low as well. The staff said these are to be expected with the C-PAP machine.

We got two more rounds of kangaroo care this weekend. Both Mom and Dad each got a two-hour session. It was great. He's also recovered from his hoarseness and can truly cry. Granted, it's a cry that volume-wise fits him, but it's a real cry and doesn't sound quite as cat-like or bird-like as some preemies do. He is easily soothed by his tiny pacifier (called a "Wee Thumbie") and tends to fuss when you take your hands off of him. His tiny hiccups are quite adorable.

He also continues to do well with feeds and should finish up gut-priming today. That means the volume of breast milk will likely increase. He's grown to 1 lb, 14 ounces and 13 1/4 inches long.



Anonymous Anonymous said...

Dear Kara, Ben & Truman,

I just read your wonderful new posts. I am delighted to hear how well Truman has been doing.

Wishing you all the best.

Take care.

Kathleen, December Expecting Club

10:22 AM  
Blogger Mama Bee said...

I've been checking for updates daily and I'm glad to see that Truman is doing so well. I pray that things continue to stay bright and that Truman is home with you as soon as possible!


10:34 AM  
Blogger Katie said...

Kara and Ben,

You don't know me, but I've been following Truman's progress from the beginning. I heard about you from the Dec ddc on Babyzone. Another member posted your link. I am so amazed by Truman and also by you two! I just wanted to tell you guys that I am praying for you and my kids, husband and I check each day for progress and pictures. Truman is truly an amazing and beautiful little boy!


10:36 AM  
Anonymous The Ezermans said...

Ben and Kara -
We keep up with Truman daily and are so happy that things are going well. We continue to think of you all often and keep you in our prayers.

The Ezermans

10:50 AM  
Anonymous Kim said...

What wonderful news!! This little boy is such a miracle. He'll be home and you'll be running after him before you know it!!

12:46 PM  
Blogger christmasfairy said...

Dear Ben and Kara,
how he has changed, he looks like a strapping proper boy now ( but in minature form) lol
He is a miracle and I watch and read avidly to find out how hes doing , your story has touched people world wide ( im in england)
Give him a big kiss and I hope Kara is coping because I remember when my son was born ealry it caught up on me and i virtually melted down,
look forward to the next installment

1:16 PM  
Anonymous Anonymous said...

that is fantastic news! we already new he was a fighter congrats!!
thats really neat that u both got another go with the kangaroo care i bet the feeling is amazing to have that skin on skin contact i remember i use to love that with my dd.
take care and its so nice to get up first thing in the morning and see these great posts!! (nz time its night wen its ur day)
kainesmum dec exp 06

2:47 PM  
Anonymous Gwen Currry said...

Ben and Kara and Truman,
I do apologize for not sending a message sooner, but I am computer challenged and had to call Erin for her to walk me through the directions. At any rate, I am so thrilled for both of you and the advances that Truman is making. Y'all are in my prayers every day, and considering how well Truman is doing, I know lots of people are lifting that sweet baby up in their daily prayers. He is looking so good and Kara, that smile on your face holding Truman was as they say "priceless. Know you will all three continue to be in my prayers. The news was great today. Thank you for keeping us all informed out here in Lubbock.
Love, Gwen Curry

3:37 PM  
Anonymous Anonymous said...

It's amazing how well Truman is doing! He is so lucky to have parents that won't give up on him. I hope it's only good news from here. Keep up the faith and know my prayers and thoughts are still with you. Keep up the good work Truman!!!

Kayla Townsend

4:22 PM  
Anonymous Cassi said...

I am so glad that he is doing so well. When Mrs. Altenbaumer told us yall could hold him everybody was delighted. God has done so much in yalls lives he is in my prayers always
love ya,

4:57 PM  
Anonymous Maggie said...

I'm so happy to hear about Truman and CPAP! As for the desats and bradys....many of us have seen them suddenly disappear when they are about 35 weeks. I know it's hard to imagine them going away - but give it a few more weeks. I'm sure you will be as surprised as us!
Keep up the hard work Truman!
Maggie (IV Preemies)

5:19 PM  
Anonymous Mom2BAgain said...

Your little hero has touched SO many lives. There are countless people praying for him every day. Truman has a huge spot in all of our hearts. We love you tiny Truman!!!

5:26 PM  
Blogger Ruth Rachel Vendsel said...

Wonderful news! We are cheering for you.


6:27 PM  
Anonymous Anonymous said...

I am so happy for you guys. Truman sounds like a very special little guy. He already looks much bigger and older. I heard about you on an IV message board, and check every day. Good luck, Truman. Keep up the good work!!!

11:12 PM  
Anonymous Stephanie said...

Awww he is too cute!! Growing so well! Everytime I check in he is always up two ounces!! YAY Truman!

11:38 AM  
Anonymous Anonymous said...

Hi you guys!!! Truman truly is an amazing little boy!! I am praying for all of you as are many many others! Please keep us updated!

stacy (IV Dec 06 EC)

4:31 PM  
Anonymous Stacy Green said...

Still sending prayers and energies for Truman's continued health and strength all the way from the UK.

He's a special little boy and so truly loved. WTG Truman sweetheart!


4:55 PM  
Anonymous Casey DiBenedetto said...

I am so happy to hear all the good news! You all continue to be in my thoughts and prayers!


8:28 PM  
Anonymous Aisha,december expecting club said...

Hello kara,I am so glad and releived to see that truman is doing so well after surgery.I always read his progress and just never responded.It brings back memories so vivid for me that reading trumans story reminds me of the long journey of prematurity i been on with my preemie son.Just to give you some hope he is now a healthy 10 1/2 year old.Kara kiss truman for me and tell him that i said keep being a fighter!Aisha

8:43 AM  
Anonymous Anonymous said...

Ben & Kara: Truman looks great! Go Team Truman!

great uncles out west....

9:04 AM  
Anonymous Anonymous said...

Dear Ben & Kara, Congratulations on the birth of your beautiful child. I am praying for you and am very happy to hear that Truman is doing well. Extraordinary beginnings open extraordinary lives! God Bless, Steve Lazenby, Phoenix

9:15 AM  
Anonymous Anonymous said...

Thank you for sharing Truman's story. My sister has a 27 weeker in a nicu who was 1lb, 10 oz. It is encouraging to see Truman's progress. He is beautiful. We will keep all of you in our prayers.

8:30 PM  

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