Teeny Tiny Truman

This page is all about Truman, born Aug. 8, 2006 to Kara and Ben.

Tuesday, September 05, 2006

Progress Update: Tuesday, Sept. 5









Truman is four weeks old today! He continues to recover well from surgery. Although still heavily sedated with pain medication, he appears to be acting like his normal self again.

Apparently, the distention in his stomach and bowel was causing more pressure on his lungs that anyone realized. We wrote in our last post that his ventilator settings decreased immediately upon surgery. By that evening, Truman had graduated from the high-frequency oscillating ventilator to the conventional ventilator. The prior ventilator sort of vibrated his lungs; this one operates like a standard ventilator. It was set at 30 breaths per minute on Saturday night and by last night was weaned to 25 breaths per minute. Sometimes Truman lets the ventilator do all the work, called "riding the vent," we've also seen him take as many as 60 breaths per minute other times, which means he took 30 breaths above the machine. Although these aren't necessarily productive breaths, he's learning!

He continues to struggle with getting off the blood pressure medication. His dosage has decreased since surgery, but he still struggles with low blood pressure and may do so until he gets bigger and stronger.

He already looks bigger to us and to his grandparents. He now weighs 1 lb, 10 ounces, but some of that is due to fluid retention from surgery. Ben's parents visited this weekend and had not seen him in about two-and-a-half weeks. They said he had changed dramatically in terms of color, size, skin, and general cuteness. It's amazing the difference that short time has made.

We still continue to be very worried about his brain bleed and what long-term effect it has on our little boy. He appears to behave the same as he did before the bleed, and it does not appear to have affected his personality. Hopefully, that's a positive sign.

--Kara

36 Comments:

Anonymous Kasey said...

That is so good to hear. I frequent the Babycenter July 05 board and there is a mother there by the name of Candice. Her son Alex was born at 24 weeks. I know that she would be happy to answer any questions you have or help you with any concerns. I will continue to pray for you and yours. He is adorable, and looks like he'll be fine. It's amazing what children can bounce back from

7:40 AM  
Anonymous Anonymous said...

Happy 4 weeks to Truman!!! Truman is so handsome! I belong on the IVillage Dec 2005 Snugglers Board as well as the IVillage Feb 2007 Expecting Club board. My son was born 6 weeks weeks before his due date and was in the NICU for a month. Truman is so lucky to have you and Ben as parenst and his loving family that care so much for him. I want also thank you so taking some time out of your busy schedules to update everyone on Truman. It means a lot to hear how he is doing and you gues as well. Continued prayers to you and Yours. Cheers!!!

7:59 AM  
Anonymous Anonymous said...

Please review this link and post it in your next article.

http://www.marchofdimes.com/forms/signpetition.asp

I'm sure your getting a lot of traffic to your site and we are all praying for your little man and this is something everyone can do for your little guy to help in their own way.

8:25 AM  
Anonymous Charlisa said...

Thanks for the pictures! Little Truman is growing! We are still praying in Palestine.

8:32 AM  
Anonymous Anonymous said...

I remember when I was where you are now being so terribly worried about everything that could go wrong and was going wrong with my son. Truman has a long road ahead of him but there WILL be peace for you and him. We all want our children to be "normal", but sometimes "normal" inside of "abnormal" is not only okay, its beautiful. There are 23 week babies all over this country that are just fine, and then there are some that have problems and issues they will deal with for their entire lives. You will not only survive but you will thrive in the life of this little boy. That is your only assurance. There will be a time in the not so distant future when you look at him and laugh at his quirks and his fiesty personality because you will know that he wouldn't be here without that.

8:40 AM  
Blogger Kya said...

He looks so much bigger already!!! YES!!! Happy 4 weeks, Truman!!! Congratulations on your recent victories and keep up growing fast so you can go home soon! Tonight I'll show your new pics to my daughter, she'll be so happy to hear you're recovering :) and we'll continue praying for you as usual.

9:08 AM  
Anonymous Anonymous said...

What a cutie! I can't wait to see more pictures of Truman as he gets bigger.

9:09 AM  
Anonymous Stephanie said...

We are still praying for your little one!! I can't wait for the day we see you take him home! That will be such a blessing! God Bless you and your family!

10:33 AM  
Anonymous Anonymous said...

Wow, Truman IS looking bigger! And he is a cutie too!! We are keeping you all in our prayers.

10:45 AM  
Anonymous Erin said...

I have been reading your blog for the last few weeks and cannot believe the amazing progress. I am still praying for you and your family and hope that you have crossed the last of your hurdles. It's encouraging to read a story like yours and know that there are still miracles out there.

10:46 AM  
Anonymous Anonymous said...

Happy 1 month Truman! He does look bigger. We're glad to hear Truman has made progress since his surgery and continue to admire how strong you guys have been during this time. You and Truman continue to be in our thoughts.

Mike and Debbie

12:07 PM  
Anonymous Suzee said...

I just want you and your family that my family and I are saying prayers for little Truman. Happy 4 weeks!! I learned about Truman (love the name by the way) on Babycenter January 2007 board. I wish you the courage to get thru these times.God Bless.

12:44 PM  
Blogger suzyqhat said...

Kara, I know you from the DBA and shared your story at church on Sunday and have asked our church (First United Methodist Grapevine) to pray for your family. You and Ben have shown incredible stength and fortitude, and I just pray that you'll continue to feel God's loving embrace as you face each day. May He bring you peace and comfort, guide little Truman's physicians and care team in the NICU, but most importantly, I pray that He will place his healing hands upon Truman and give him strength to keep up his good fight.

God bless y'all!
SuzyQHat

12:54 PM  
Anonymous Anonymous said...

Truman looks great! He is such a cutie pie! Sounds like he is doing much better...I am glad to hear he is taking so many breaths and is getting his practice in. I was talking to someone the other day that had thier first baby at 23 weeks and had similar problems as Truman and their daughter is now 11 years old...so just keep thinking positive! You have a beautiful baby!!

1:26 PM  
Anonymous Anonymous said...

Thank you so much for taking the time to keep all of us updated on Truman, especially with everything that you must be dealing with.

Truman is georgous and does look bigger. I am praying for him and check up on him daily.

Happy 4 Weeks!!!!

2:40 PM  
Anonymous Anonymous said...

Happy 4 week birthday Little man!!! I just wanted to let you all know that we've been following Trumans up and downs daily and are so glad to see him feeling better. He looks so good in that picture!We too have a 2 yr. old that was born premature.Hang in there and God will keep his hands on your little one.
Audrey and Baby McDonald(Dec. board)Indiana

5:23 PM  
Anonymous Anonymous said...

Truman is a gorgeous baby boy! We are very glad that he is doing better! Happy 1 month birthday Truman!
Love,
Jason and Cinda

5:24 PM  
Anonymous Elvin said...

Hello little one. I am so glad you are feeling better.
Happy 4 week anniversary sweetheart. I love the new pictures your mummy and daddy put up, my aren't you handsome?
I know you are working hard, keep it up and you'll be home in no time.
Thinking of you.
Blessings and Peace.
Elvin.

6:17 PM  
Anonymous Anonymous said...

Happy 4 weeks, Truman! We are continuing to pray for the three of you.
Love, Summer and Corey

6:38 PM  
Anonymous Anonymous said...

I was thrilled to see the new pictures of Truman!! WOW does he ever look so much healthier all the way around! He has pinked right up, and seems to be growing, and lookes a lot more like a newborn, he is so hansome!! Glad to hear he seems to be doing well. God Bless little guy!!

Shawnee

7:00 PM  
Anonymous Anonymous said...

I, (we) just know Truman will live up to his name, as well as one day be a man of significant reckoning. How could he not, with two parents so loving. Y’all, he looks great! Ben and Kara, y’all stamped him well. He’s beautiful! I'm looking forward to commune with my newest (and arguably best looking) grand nephew Truman! I know he’s got great works to do, and yes before I get too old, perhaps I can show Truman a thing or two about wetting his fly-line and mending it too. Believe me when I say, I believe it’s in the genes. I’m betting he’ll teach his Papa and Great Uncles a thing or two…

All of our love, God Bless! Thanks for the Pix!

2 very VERY Proud Phoenix Great Uncles.

7:12 PM  
Anonymous J.J. said...

Truman is looking good, and continues to be in my thoughts and prayers. I look forward to meeting him someday.
Ben and Kara, you are also in my prayers, stay strong.

your friend,
J.J.

7:48 PM  
Blogger Brian and Heather Tankersley said...

BEAUTIFUL !!!! Pictures do say a thousand words - like they say. He looks amazing and I am glad to see the two of you in the pictures. It looks like you are taking good care of each other also. I am so proud he is over breathing the vent. That his great progress at his age(premie - age). God Bless you all~

9:07 PM  
Blogger HHH said...

Happy 4 weeks. I have been reading your blog since the beginning and he has changed so much. He looks really big for a 1lb baby and his color is great. My twins were born at 25 weeks at Baylor Dallas. Looking at your pictures bring back memories. We were there so long I think I can even guess what "pod" you in from the pictures! The little nametags, what beautiful keepsakes! Good Luck to little Truman and to his parents too. The time will go by so fast. Keeping you in my prayers.

9:30 PM  
Anonymous Anonymous said...

Your little Truman is beautiful! I will continue to pray that he grows stronger and that all is well with him and your family.

9:33 PM  
Blogger Your cousin, Steph said...

Hey Ben and Kara,
I'm so very happy to see the recent pics of you. Tonight is the first night I've gotten on here because I've been reading all of Grandma's printouts she's been getting. He looks so amazing! So much better than the last pics I saw. I pray for you and little Truman every day, and I can't wait to meet your little man.

11:02 PM  
Anonymous Uncle Chris & Aunt Jeri said...

How absolutely wonderful he (and the both of you) look. A huge milestone to mark and give thanks for. We pray daily for peace and rest for the three of you with all you face together as a family. We love you.

On our knees.

GiGi & Bapa

7:48 AM  
Anonymous Cindy said...

Keeping all of you in our thoughts & prayers. Got your website from Paula (Altenbaumer). She keeps all of us in Sulphur Springs informed. Now I won't have to bother her and can check in here. Thanks for all of the updates.

10:50 AM  
Anonymous Anonymous said...

He is so cute, Im glad that he is doing so well... I continue to pray for you little man. May God bless you all richly!

11:03 AM  
Anonymous Anonymous said...

I'm on the Dec. 06 board and watching Truman's progress , thank you for giving ungoing updates.

I continue to keep him in my thoughts and pray that everyday brings great things.

1:01 PM  
Blogger Anita Lobsenz Photography said...

I am so touched by your story. I'm about 26 weeks pregnant, also with a little boy. I will keep all three of you in my prayers, and looking forward to healthy happy pictures of Truman. If you ever come to California (Redondo Beach) I would love to offer you a complimentary photo session of your family. I am a baby photographer, and work and volunteer with many childrens' charities. Take care.

4:03 PM  
Blogger Michelle Blackmon said...

I am so glad to hear that the surgery relieved some of the problems Truman was having! We will keep all of you in our prayers.

Love from SS,
Michelle Blackmon

10:41 PM  
Blogger Miracles & Dreams said...

He is amazing! Happy 4weeks Truman.

Thanks for sharing your story and journey.

11:18 PM  
Anonymous Anonymous said...

Just wanted you to know that you are all in my thoughts and prayers.

Donna Williams

7:27 AM  
Blogger existentialfunk said...

Keep going, little guy! You look as cute as any baby has a right to!

9:23 AM  
Anonymous kathy said...

I come to your site almost everyday to get my Truman fix. I am so happy he is doing well. What a fighter you have on your hands!!!!! Best wishes and Truman....keep up the great work! You are an inspiration to so many people!

1:43 AM  

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