Progress Report: Wednesday, August 30
Truman had a very bad day yesterday. He's back on a pretty high dosage of the blood pressure medication and his ventilator settings have had to go up quite a lot. He has also developed an infection. There is also a red spot on his abdomen that appeared tender at one point, but no longer does. There is a possibility that the red spot indicates a perforation in his bowel. Although he still does not appear to have a major bowel infection or NEC, it can no longer be completely ruled out.
The surgeon tried the dilation procedure yesterday with no success. Truman is also pale and clearly doesn't feel well. Although he was fidgety as usual on Monday night, he was non-responsive to touch at mid-day on Tuesday. Our little boy is clearly very sick.
We've been told that as soon as he is stable, surgery will likely be performed to correct the blockage in his intestine as it seems to be impacting his other body systems now. The surgery is likely to require removal of a portion of his bowel and a colostomy bag for a couple of months until he gets bigger and the bowel can be re-connected. At this point, we are just waiting for the call on when surgery will be. We expect that it could happen as early as tonight, but we just don't know. Truman has to re-stabilize before he can have another surgery.
Although this complication of a meconium plug is not that uncommon in preemies born latger in gestation than Truman, it is very uncommon for micropreemies. It's clear that the nursing staff is worried about him.
In some good news, his lungs continue to get stronger. X-rays show that more alveoli have opened, and he does a good job of breathing spontaneously when the ventilator is turned off for a few seconds to listen to his heart or abdomen.
He also has learned to open his eyes more with his eyelids rather than wrinkling his entire forehead, so he opens them larger and for longer periods now. Also, he's begun developing the classic newborn hair that sticks up off the top of his head, and he has gained a little weight and is now up to 1 lb, 8.5 ounces.
Thanks for the continued prayers,
Kara & Ben