Teeny Tiny Truman

This page is all about Truman, born Aug. 8, 2006 to Kara and Ben.

Saturday, September 09, 2006

He eats and speaks ...


CURRENT WEIGHT -- 1 lb, 12 ounces
CURRENT HEIGHT -- 12 5/8 inches

Truman had outgrown the tube on his ventilator and needed a bigger one. Since they had to extubate him to do that, they decided to try him on nasal prong ventilaton (basically C-PAP with 20 reminder breaths every minute). So, he now has two prongs in his nose and no air tube down his throat. He's doing a lot of the work breathing, with the machine assisting. Without a tube hindering his vocal chords, he can now make noise. He's hoarse from a month of having a tube in his throat, so he can only squeak at the moment. The picture above is his attempt to scream. Although he was mad, the sounds were quite cute. It was so wonderful to hear his voice for the first time since he was born.

What is also great about being off a conventional ventilator is that we have gotten to see his full face for the first time without ventilation tubes. Although the prongs have a little strap that obscures the middle of his face, unlike the tube down his throat, his nose tubes are removed periodically for suctioning his nose and other tasks. He can handle some short periods with no ventilation assistance.

Truman will most likely have to go back on the conventional ventilator at some point over the next few days to a week. He is still a little small to be on nasal prong ventilation, but the physicians thought that since he had to be extubated anyway, they'd give it a shot. Also, a lot of preemies get pretty tired from all the work that breathing takes and just get worn out the first time off the ventilator. So far, he's doing well with it.

Ben got to change his first dirty diaper last night. Some of the remaining the meconium finally passed on its own, and Ben had the pleasure of getting that sticky stuff out and off of Truman. It was a great initiation to many more stinky diapers in our future.

Ben did not get to try kangaroo care last night. With the change in ventilation, we needed to give Truman a break before we stressed him out by taking him out of his cozy isolette again.

Truman also started breast milk feeds again yesterday. He processed the first one, and we haven't heard on the subsequent ones, so keep your fingers crossed. At latest count, Truman gained another ounce to 1 lb, 12 ounces and he has grown an inch to make him 12 5/8 inches long.

--Kara

17 Comments:

Anonymous Anonymous said...

I am visiting from the Dec06 board and watching you all closely. So pleased to hear of Truman's progress and wonderful about kangaroo care. My daughter was born at 1 lb 12 and is now happy and healthy. I wish you better and better days. It's a long road but you will make it... Sandra

11:20 AM  
Blogger Brian and Heather Tankersley said...

GO Truman GO! He is making wonderful strides right now! Answered prayers!! We will continue to follow progress closely and continue to send those prayers UP! Paitlyn and Jaxon love the pictures the most so please keep those coming. All our love!

12:46 PM  
Anonymous Anonymous said...

WOW! I cannot believe he is off the vent even for a few days. That is absolutely amazing. My 23 weeker didn't even consider living without his vent until he was 2 months old. Plus, they had to give him a round of steroids to even get that out of him. I'm so impressed with Truman. Way to go!

1:03 PM  
Anonymous Maggie said...

Hooray for Truman!!! I'm happy to hear that he is on CPAP! I'm sure hearing him cry was INCREDIBLE! I remember the first time Sarah cried after getting off the vent. She did a small stint on CPAP and went back on the vent before getting off the vent for good. The nurses all said that the fact she could go on CPAP for a day or two was great. It showed that her lungs were getting stronger!

I didn't get to post to your Kangaroo care post yet - but Hooray for Truman, Mom and Dad! Both my husband and I used to compete for Kangaroo care time. What a nice relaxing way to bond with baby!

Keep up the hard work Truman! You can do it!

Maggie (mom to 24 weeker - IV Preemies)

2:27 PM  
Anonymous Anonymous said...

gosh!! i said yesterday how much he has grown but you can really see the changes in him in that photo!! he is lovely really lovely and doing so well welcome dad to the joys of yucky sticky nappies!!lol hes looking really good!
kainesmum dec exp 06

3:43 PM  
Blogger Kya said...

Praying for Truman everyday :) Can't wait to have my baby here, in 3 months, when Truman was due, but I'm sure happy to know how a preemie like him can (AND WILL) make it!!!

5:49 PM  
Blogger Kellie said...

What a wonderful sound it is to hear your micropreemie cry for the very first time! Congrats on Truman coming off the vent. He looks great in the new pics and is getting bigger and stronger every day. I'm glad to hear kangarooing went so well for you yesterday too. Hopefully Dad will get a shot in the next few days.

6:53 PM  
Anonymous Anonymous said...

I learned about your blog from the ivillage Dec 06 board, and have been following little Truman's progress since the beginning. I check every day for updates, and I am so happy for you all that things seem to be progressing so well. He is so cute, and what a little trooper! Hang in there T3!! You are in our prayers here in Chicago...

7:08 PM  
Anonymous Heather said...

I am so happy about Truman's progress! I love the new pics, too. What a cutie. Everyone over at the Dec EC is so excited about Truman's good news.

7:25 PM  
Blogger Ruth Rachel Vendsel said...

Dear Kara and Ben,

Hi guys, this is Kara's friend from S.S., Rachel (Allen) Vendsel. I just found your blog tonight and I have spent the last hour reading all your posts! I am amazed and moved by your story. It makes me really happy to see all the support and encouragment you are receiving. It sounds like Truman is quite a fighter and has two incredible parents loving on him, besides all the excellent medical care. Know that Mike and I will be lifting you up in prayer regularly and I will check in regularly for updates. My prayer is that the Lord would be close and that you would feel Him keeping you in the hollow of His hand.
Love and prayers,
Rachel

8:45 PM  
Anonymous Anonymous said...

This is all such great news!! He seems to be doing better and better, and he looks SO wonderful! I love seeing his pictures, there is so much progress every time, he is starting to look nice and filled out, and so much like a newborn, its just all wonderful!
Shawnee

11:40 PM  
Anonymous danielle said...

I love to hear good news about Truman! Cute photo, you will look back one day soon and be amazed at how fast & big he grows!! Keep it up.

6:31 AM  
Anonymous Anonymous said...

Dear Kara & Ben,

Checking in from the Dec06 & Preemie board. I am so happy that Truman progress is coming along. 1. 12 lbs is amazing!

Cheers to you & Truman

Heather

7:12 AM  
Anonymous Widge/Kathy Stamback said...

Congrats to Truman and both of you for his amazing progress. What a cute little guy!

2:14 PM  
Anonymous Anonymous said...

!!!!!!!Go Truman, Go Truman , Go Truman!!!!

Look at your precious bundle of joy, he's adorable.

Just another checkin from the Dec06'ers;)

6:50 PM  
Blogger The Bloom's said...

I've been reading for awhile (from the Oct 06 board). I'm so glad to hear Truman is doing better. He has had such a hard time. He looks great in that pic trying to scream his little lungs out! I will pray he continues to improve every day.

11:02 PM  
Anonymous Charlisa said...

What an awesome picture!!! Thanks for the update! Still praying in Palestine.

9:32 AM  

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