Teeny Tiny Truman

This page is all about Truman, born Aug. 8, 2006 to Kara and Ben.

Thursday, October 26, 2006

Bath Day!

CURRENT WEIGHT: 3 LBS, 8 OUNCES

Truman enjoyed his first bath by Mom and Dad very much and only fussed at the end once the water got a little cold. Trying to dry off a tiny squirming baby was a challenge, but we loved it.

Here, Truman has been wrapped up in a heated hat and blankets before being put into the tub with a couple of centimeters of warm water in the bottom.

Truman in the midst of his first bath from Mom and Dad.

Kara gets practice at trying to dry Truman off.

Truman is almost dry...

Truman in his freshly cleaned birthday suit.



Truman had some desats overnight, so they put him back on the canula. Nurse Gayla assured us this is not a setback, but more of a break so that he doesn't tire himself out and use too many calories and slow his growth. The canula is set at .5 liters, but he's clearly proven that he can breathe on his own. They also ordered a round of blood tests to make sure that it is just fatigue rather than illness causing the desats. The initial results look fine.

We also learned that Truman had another eye exam that we didn't know about on October 16. Things still are progressing normally, and there are still no signs of plus disease -- the eye disease caused by oxygen exposure.

His feeds were increased to 30ccs today. That's a full ounce per feed or 8 ounces per day.

Some of you have asked when Truman will come home and whether there is a requisite weight he much reach. The short answer is that we don't know when he will come home, and there is no requisite weight. The goal for all preemies is their due date, which was December 5 for Truman. The average at Baylor is at 36 weeks gestation. Truman is 34 weeks now and clearly will not meet this average, due to his particular challenges. There are some milestones any preemies must cross and some particular factors in Truman's case.

Now for the long answer to the question: when Truman had the bowel surgery done, we were told that once Truman hit 2000 grams, or about 4 lbs, 6.5 ounces, he would be big enough for the re-sectioning of his intestine. Based on his current growth and the goals they have for his growth, he is projected to cross that magic number anywhere from the second week of November to just before Thanksgiving. Of course, he could go through another period of slow to no growth and stall that process, but we're hoping he continues at a reasonable pace. Once he reaches 2000 grams, he will have to be evaluated to see if he's ready for surgery, and of course, the surgery would have to be scheduled and performed. We've been told to expect about a week post-op recovery, which will include not only typical post-op recovery that any surgery requires, but also a new round of "gut priming" of the lower intestine. Remember, it hasn't really been used. Truman will have to work back up to full feeds after the surgery. He will also be intubated for the surgery and work back off of that.

In addition to his surgery, like all preemies, Truman needs to outgrow the desats and Bradys and be eating and growing at a good pace. That does not mean that he needs to be fully off of the canula to come home. Many preemies go home with a canula and apnea monitor. Although we hope he can leave the canula at the hospital, and we have confidence that he can, we do kind of hope he has an apnea monitor for our own peace of mind.


--Kara

11 Comments:

Anonymous Anonymous said...

He is doing so good. I am so happy for ya'll. Hey Truman, Keep up the good work.
Judith Marie

4:00 PM  
Anonymous Anonymous said...

I'm so glad that you posted pictures, he is just so adorable! I bet the bath experience was a great one for you.

I check your blog often and love to read about your little one and his amazing progress.

Keep getting stronger little guy!

Gina
BBC Jan. 07 board

7:01 PM  
Anonymous Anonymous said...

Hi- Im Christy and I am due in January. I seen the link to your blog months ago on babycenter and I have been following Trumans journey closely. I just wanted to say that he looks great and has grown so much. He has acually been a blessing for me and my family. LOL Thats kinda weird I guess how someone we have never met could be a blessing but its true. My grandmother dont even know how to cut on a PC and she asks me "Hows that lil Truman baby doing?" LOL When I feel stressed out and things seem so hard I think about little Truman and he gives me that little extra push I need.

7:06 PM  
Anonymous Anonymous said...

Ben and Kara,
Truman is a heartbreaker! He is so beautiful! It is great to hear that Truman is rocking on and going strong. It won't be long before he will be in your arms in the comfort of your own home. Give him love from us!
Jason and Cinda

7:36 PM  
Blogger A day in the life of Luke said...

Thats great he's doing so well. I didn't realize the extent of what he has to come...

Soon though, he'll be home with you and you'll be busy entertaining him and chasing him around your house. I check your blog every day to hear about the new and exciting progress Truman continues to make.

Bath time looked like so much fun for you all!!!

7:39 PM  
Anonymous Anonymous said...

I'm glad you're not expecting him to come home before his due date. I thought my son would, and he ended up coming home July 23 (his due date was June 22). He had 3 hernias repaired and then somehow contracted whooping cough in the NICU and had to get better from that-the journey seems so long now but I swear this will all seem like a very distant memory when it's over with. Email me anytime. carrieserna@hotmail.com

8:57 PM  
Blogger Maggie (Sarah's mom) said...

I love the pics! Isn't it awesome to interact with Truman during bath time? That ended up being one of my favorite NICU activities.

I'm glad that things are going well. Needing some O2 isn't a set back. He just needs to recharge his batteries! Sarah's recharge was when they started tube feeding her again. I was really upset but they told me she was burning too many cals trying to eat. Sure enough they were right. In a few days she did much better. I believe that Truman will do the same though the means are a little different. A little R&R does a lot!

Maggie (IV Preemies)

9:48 PM  
Anonymous The Ezermans said...

Truman is SOOO cute! He has so much hair! Way more than Alena (born 6/28/06) - she is still almost totally bald! I'm so glad he is doing well and you got to give him a bath! Yay Truman!

The Ezerman's

12:07 AM  
Anonymous changa0429 said...

I loved the pictures. Truman is just getting so cute. Isn't it nice to get all those leads off for a minute when they are in the bath?

Candace (IV Preemies)

8:22 AM  
Anonymous Anonymous said...

He is an absolute doll! My son came home from the hospital on oxygen and it was really no big deal...

12:14 PM  
Anonymous Anonymous said...

My goodness, he is just the cutest little baby ever! So glad you are finally getting to do more and more of the every day things, it looks like so much fun!

-katie
from ivillage Dec 2006 board

1:58 PM  

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