Teeny Tiny Truman

This page is all about Truman, born Aug. 8, 2006 to Kara and Ben.

Wednesday, November 08, 2006

Three Months Old!


After what appeared to be a massive weight loss the day before and a massive weight gain yesterday, we think Truman must have had a bad weigh on Monday night. So, we are not nearly so sad now that it appears he is still going on the right direction even with a couple of slow days or minor losses over the past week. It was just the major loss that we were particularly worried about.

Today, Truman took another full bottle from his occupational therapist. As a result, the order has been given for Truman to get two out of every three feeds from either the bottle or the breast (or a combination). The next step is full nippling, which is required for going home. His feeding tube has been moved from his mouth to his nose, which appears to be helping him achieve a better seal on the bottle nipple and more successful feeds.

Truman also graduated to a micro-flow canula today. It is set at .05 liters on flow, which is barely any flow at all and at 100 % oxygen. I asked if the increase in oxygen is a setback. Nurse Rebecca explained that it is a step forward because although it is 100 % on oxygen, the flow is barely there. What is particularly significant is that if a baby goes home on oxygen, this is the type they go home on. She explained that Truman is at a point where the hospital is beginning to test things out for what support (if any) he will need upon discharge.

Although Truman still has his bowel re-section surgery looming before he can go home, we've been told that putting a bowel back together is a simpler process than taking it apart. He's only 5.5 ounces from the target weight to be evaluated for surgery. It's such a huge step to finally be talking about discharge rather than it being simply some hazy target to far in the future to contemplate.

And finally, here are a few more photos. These are of Truman meeting his paternal grandparents up close for the first time, taken six days ago:

Gramma gets to hold Truman for the first time.

Truman has found a grip on Gramma's hands.

Meeting Truman up close.

Grampa gets to hold Truman for the first time.

Truman and Grampa.

--Kara & Ben


Anonymous Lori Johnson, Shelley Idaho said...

Sounds like Truman is doing really good. I am sure your really looking forward to getting rid of the colostomy. I remember it like it was yesterday when we didnt have to worry about those anymore.

6:50 PM  
Anonymous the ezermans said...

WOW - go Truman! I'm so glad to see that things are going well and that homecoming seems to be close at hand! Will you still keep us posted when he is at home? We all love Truman!

The Ezermans

8:46 PM  
Anonymous Anonymous said...

I think you have typo for his weight - 1249 grams - it's gotta be more than that!!!

7:03 AM  
Anonymous Anonymous said...

Happy birthday Truman! Looks like you had a good visit with Grandma and Grandpa. From the pictures you can tell that they enjoyed it very much. As always we are thinking about you three...can't wait for the day that you get to come home!
Jason and Cinda

9:40 AM  
Anonymous Anonymous said...

Ohh!! Truman you are getting so big! The pictures are wonderful and you are growing like a champ! I know that your mom and dad can't wait to have you home! I've been following your story from the beginning and I am so amazed at your stregnth (not to mention your parents). Please keep us updated when he is finally released!

Jaime, in Indiana
Dec 04 / May 06 Baby Center

10:06 AM  
Anonymous Anonymous said...

I don't normally post here, but I check on Truman every day. I just had to post today after seeing the pictures of Truman meeting his grandparents for the first time. How absolutely wonderful and exciting!! Truman is just moving along beautifully and and it tickles me pink to read about his advances everyday.

7:04 PM  
Blogger Brian and Heather Tankersley said...

whooo hooo!!!!!!!1 I can't believe he is 3 months old. He looks great with Gma Janet and Davis. Grow Truman Grow!

8:45 PM  
Anonymous Anonymous said...

Good luck with surgery, He will be in my thoughts and prayers!

3:02 PM  

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