Teeny Tiny Truman

This page is all about Truman, born Aug. 8, 2006 to Kara and Ben.

Sunday, August 13, 2006

Update on Truman's Surgery

Truman's heart surgery will be performed at 6 a.m. on Monday, August 14. The entire procedure, including set-up, takes about an hour. We've been told to expect a couple of rough days after the surgery as Truman will likely go back on blood pressure medication and will be a very sick little boy for a while.

This morning (Sunday) while a follow-up echo was being performed on Truman's heart, his neonatologist asked to see a sonogram of his head as well. We received preliminary results this afternoon. It appears that Truman has suffered a brain bleed that is somewhere between grade II or grade III. Sometimes these bleeds resolve themselves and result in little to no long-term effects. Others result in long-term cognitive delays ranging from simple learning disabilities to mental retardation. Cerebral palsy is also a possibility. A full sonogram of his brain will be performed tomorrow. The official medical term for the condition is intraventricular hemorrhage, or IVH. Fortunately, despite the bleed, he has shown no signs of severe brain trauma.

We also learned today that Truman had a high white blood count in today's blood labs, which could be a sign of a infection beginning. A course of antibiotics was started to help him get over any infection.

Needless to say, today has been a very rough day. We were told to expect some bad days and some setbacks over these first few weeks, but it hasn't made it any easier to deal with.

But not all news today was bad news. We learned that he gained two ounces yesterday and that his blood gases and blood pressure continue to look good. He also remains very stable and physically alert and active.

Thank you all for your continued support, meals, kind words, and prayers. We appreciate them all.

--Kara

7 Comments:

Anonymous Anonymous said...

Dear Truman,
You are a true man of God. We want you to know that we're praying for you to have a very successful surgery tomorrow morning and and a quick and peaceful recovery. We also want to hug you up here in Lubbock as soon as you can travel.

Jaci and Giles McCrary
and Stephen Crim
(Members of Covenant Presbyterian Church in Lubbock, TX)

5:08 PM  
Anonymous The Pipkins said...

Kara, Ben, and Truman ~
Our thoughts and prayers are with you and your entire family.
Much love,
Brian and Mary Beth Pipkin

5:39 PM  
Anonymous Anonymous said...

Dear Truman, Child of God,

May the Holy Spirit enfold you and guide the hands and minds of all those who are caring for you. Special prayers also for all of your family.

De Colores,
Sarah Kendall
St Luke Presbyterian, Amarillo

5:42 PM  
Anonymous Anonymous said...

Our love to your precious family. We are praying for an easy successful surgery and continuing progress.
Love,
Sue and Eddie Hammons

6:07 PM  
Blogger Sonia and Jong said...

Dear Kara and Ben,

Carrie asked us to pray for Truman on a Christian-based support website called Hannah's Prayer. Our little Isaac was born on April 4, 2006 at exactly 23 weeks (and he is a surviving twin, so he was smaller than a normal 23 weeker) and he is still growing stronger each day in the hospital. I just wanted you to know that you have a mom of another 23 weeker praying for you. I also wanted to let you know that Isaac is doing very well, all things considered to give you hope. I am providing our blog address below which has pictures of Isaac.

Sonia
www.soniandjong.blogspot.com

6:47 PM  
Anonymous Anonymous said...

Ben, Kara, and Truman,
We just wanted to let you know that we will be thinking about all three of you tomorrow. I know you guys are in for some rough days, but just know that Truman has some very special angels watching over him and there are many people that will be constantly thinking and praying for him here in Lubbock. If there is anything that we could do let us know. We love you guys!Thinking of you,
Jason and Cinda

9:54 PM  
Blogger FFF said...

Kara and Ben,
Riz and I will be thinking of you and little Truman tomorrow and sending you lots of good wishes. Here's hoping he has more and more good days and keeps getting bigger. Hugs, Fermeen

10:34 PM  

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